St. Clement's by-the-Sea in the News

Resident embarks on organ donation campaign // She has witnessed benefits of transplants with family members

April 1, 2004


Diane Gallegos knows firsthand what it means when someone decides to be an organ donor. It could mean the difference between a life on a machine and a healthy normal life. It could mean the difference between life and death.

On Dec. 19, 2003, Christopher Powell received a new kidney from a live donor after nearly three years of searching. Powell, 19, was diagnosed with kidney failure in February 2001 and was told by doctors his kidneys were rapidly deteriorating and would need a kidney transplant. Powell was on dialysis until his transplant.

``Christopher is doing excellent,'' Gallegos, his grandmother, said. ``He's better than normal.''

He is attending adult education classes and will be transferring to Saddleback College in the spring.

``He's interested in being an X-ray technician,'' Gallegos said.

Now that the family's struggle is over, Gallegos' new mission is to spread the word about organ donation. Gallegos has become an ambassador with OneLegacy, which is a transplant donor network, servicing Santa Barbara down to Orange County.

The group is a bridge between the hospitals and the transplant center, and a bridge between donors and transplant recipients, said Tenaya Wallace, manager of communications with OneLegacy.

Gallegos made her first speaking engagement Sunday morning at St. Clement's By the Sea Episcopal Church. She will be speaking to clubs, churches, hospitals and any other group who will lend an ear. Her primary goal is education -- speaking to people about the importance of organ donation and the need that is out there. Part of it includes encouraging people to let their family members know that they wish to become organ and tissue donors.

As she educates, Gallegos is also promoting the Gift of Life Run/Walk, benefiting OneLegacy. That is on April 17 at California State University, Fullerton.

Right now the waiting time is a minimum of five years for any organ, Gallegos said. This month Gallegos is also spreading awareness of April as National Donate Life Month.

`I will share our story,'' she said.

Gallegos said her family has been touched by donors twice. The second time was through her granddaughter, Andrea Valdez, who received two cornea transplants. She's a young mother with two children.

``She would have never seen her baby (her second child),'' Gallegos said, ``or have been able to see her children grow. It was because someone was kind enough to fill out their donor card and let people know. Our family has been blessed by people who will do this.''

OneLegacy works with deceased donors. So the organization emphasizes communication in the family about organ and tissue donations. It is important not only to fill out the donor card but to speak with family members and next of kin about it, Wallace said.

``Usually the donor card isn't with the person when they've passed away,'' Wallace said. Often if the family is approached at the time of a loved one's death, it's a difficult time and if they don't know what the person wanted, it is hard for them to decide, she said. If they did speak to the loved one about it, the family can just give consent.

``It's critical to have a conversation (with) your family about donations,'' she said.

Wallace said OneLegacy focuses on organ and tissue donations, they don't work with blood and marrow. She said there is more than 83,000 people waiting for organs -- kidney, liver, heart, lungs, pancreas and small intestines -- in the United States. ``One ambassador described to me -- that (many people) would fill a Super Bowl stadium,'' she said.

She said 17 people die every day in this country because they don't receive the organs they need. Another name is added to the waiting list every 13 minutes, she said. One deceased donor can save up to eight people's lives from all the different organs in that one body.

Another fact, according to Wallace, in tissue donations, one person can enhance lives for up to 50 people. Tissue donations include: corneas (to give sight), skin (for burn victims), heart valves, cartilage and tendons (for knees and ankles), veins (to resource circulation), and bone (for instance, if you have bone cancer, doctors can take the tumor out of the bone and replace that part of the bone with a donated bone).

Wallace said that many people have been touched by transplantation, especially since diseases leading to the need are often common. The No. 1 disease that leads to the need for a kidney transplant is diabetes/hypertension, she said. Furthermore heart disease, a huge killer, can lead to receiving heart transplantation, Wallace said.

``More and more doctors are seeing it as a good option for people with organ failure,'' she said. ``Because there are so many people in need, the average time waiting for a kidney is five to six years.''

For more information, visit

www.onelegacy.org/

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www.giftoflifeoc .org